Due to the absence of national standards for assisted living and significant differences among the states, consumers are faced with a situation that can be confusing and that has a high potential for misunderstanding and even fraud. For instance, an individual might need help taking medication. How, and by whom, is it determined whether she is self-directing or needs substantial “medication management”? Who is legally capable of providing that level of help? Who is responsible if there is a problem? What happens if she requires more care as time goes on? Can the facility ask her to leave? Can she appeal that decision? What happens if she runs out of money?
As a result of these and other issues, assisted living advocacy takes many forms. Advocacy can focus on issues ranging from quality of health and personal care to contractual rights to landlord-tenant rights and responsibilities. Following is an overview of some key assisted living advocacy issues, on both policy and individual consumer levels. We invite you to check this page in the future for updates on our advocacy work and for information on what consumers and consumer advocates can do.